<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0" xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:googleplay="http://www.google.com/schemas/play-podcasts/1.0"><channel><title><![CDATA[Going My Own Pace: Spoonie worksheets]]></title><description><![CDATA[Worksheets, templates and downloads to help spoonies with everything from chasing joy, to tracking symptoms, creating pain management plans and more]]></description><link>https://goingmyownpace.substack.com/s/spoonie-worksheets</link><image><url>https://substackcdn.com/image/fetch/$s_!RodE!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg</url><title>Going My Own Pace: Spoonie worksheets</title><link>https://goingmyownpace.substack.com/s/spoonie-worksheets</link></image><generator>Substack</generator><lastBuildDate>Tue, 21 Jul 2026 17:48:15 GMT</lastBuildDate><atom:link href="https://goingmyownpace.substack.com/feed" rel="self" type="application/rss+xml"/><copyright><![CDATA[Melissa]]></copyright><language><![CDATA[en]]></language><webMaster><![CDATA[goingmyownpace@substack.com]]></webMaster><itunes:owner><itunes:email><![CDATA[goingmyownpace@substack.com]]></itunes:email><itunes:name><![CDATA[Melissa]]></itunes:name></itunes:owner><itunes:author><![CDATA[Melissa]]></itunes:author><googleplay:owner><![CDATA[goingmyownpace@substack.com]]></googleplay:owner><googleplay:email><![CDATA[goingmyownpace@substack.com]]></googleplay:email><googleplay:author><![CDATA[Melissa]]></googleplay:author><itunes:block><![CDATA[Yes]]></itunes:block><item><title><![CDATA[Your HRV Fatigue Plan Download]]></title><description><![CDATA[Free worksheet for designing your personal HRV Fatigue Management Plan]]></description><link>https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Sun, 21 Jun 2026 22:15:27 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!4c7-!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I have spent many years designing systems to make life managing multiple and constant symptoms easier. My most recent one is finetuning a system I created for pain management. </p><p>The short version is that I realised I needed to catch my pain before it climbed high enough to trigger the nervous system, creating a cascade of pain signals that was very hard to deescalate. I created an If This Then That plan - a plan for each level on the pain scale. This plan reduced my flares and shortened them. You can read more about it and <a href="https://goingmyownpace.substack.com/p/my-best-pain-management-system">download the free worksheet here</a>. </p><p>This is using the same principle but for fatigue. </p><h3>My fatigue story, how this plan came about:</h3><p>I&#8217;ve lived with chronic fatigue for 20 or so years. Subject fatigue rating scales no longer make sense for me. It&#8217;s all relative. </p><p>As I&#8217;ve improved over the past several years and was able to look back at how sick I was before, the fatigue was more severe than I realised. I was more impacted than I knew. </p><p>So I started playing with a more physiological marker to guide me in my daily plans. </p><p>Heart Rate Variability. </p><p>I&#8217;ll share more about HRV and my journey soon. </p><h3>For now&#8230;I made myself a plan. </h3><p>If my HRV was in the green zone&#8230;I would&#8230;</p><p>If my HRV was in the orange zone&#8230;I would&#8230;</p><p>This one pager takes you through the process I went through. It&#8217;s going to be highly personalised to yourself. </p><h3>Download your free one pager below and see more details for how to use underneath</h3><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!4c7-!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!4c7-!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 424w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 848w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 1272w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!4c7-!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png" width="1080" height="1080" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1080,&quot;width&quot;:1080,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:172226,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/png&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:true,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/203007809?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!4c7-!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 424w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 848w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 1272w, https://substackcdn.com/image/fetch/$s_!4c7-!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F83b07685-39cb-4245-b8f3-7fe024ff2a07_1080x1080.png 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><h2>Download:</h2><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">Hrv Fatigue Management Plan One Pager</div><div class="file-embed-details-h2">4.5MB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/05a6dac1-f604-4ad6-a7d1-1d2c319873ae.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/05a6dac1-f604-4ad6-a7d1-1d2c319873ae.pdf"><span class="file-embed-button-text">Download</span></a></div></div><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><ol><li><p>First, using your wearable fitness device, find your average Heart Rate Variability of the past year. </p></li></ol><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!x0cW!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!x0cW!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 424w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 848w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 1272w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 1456w" sizes="100vw"><img 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srcset="https://substackcdn.com/image/fetch/$s_!x0cW!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 424w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 848w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 1272w, https://substackcdn.com/image/fetch/$s_!x0cW!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F01fb6e28-8c13-4f15-aa42-1f5c6dbf33fb_417x565.png 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a><figcaption class="image-caption">my current filled example</figcaption></figure></div><ol start="2"><li><p>Decide what your zones will be. I suggest making your average HRV for the past year part of your Orange zone. Take a look at your top zone and make that your green. </p></li></ol><ol start="3"><li><p>Write up your early warning signs and the things that increase your capacity. </p></li></ol><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!LJlW!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F52a486dd-0cb2-4e54-9ffc-2c68496647db_420x487.png" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!LJlW!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F52a486dd-0cb2-4e54-9ffc-2c68496647db_420x487.png 424w, 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class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a><figcaption class="image-caption">my current filled example</figcaption></figure></div><p> </p><ol start="4"><li><p>Transfer your HRV zones to the If This Then That side. Start with your Orange Zone. This is your MAINTAIN section - your daily average. What you write here will be highly dependent on what your day usually requires, how well you are and what your current goals are. As a mama of four, my maintain includes a gentle walk and one major cleaning task (so I can keep them broken up across the week). </p></li><li><p>Next fill in your non-negotiables only day - in other words, treat it like a flare day. This was the biggest change for me - consider 21 or under as a flare day. My non-negotiables include managing the children and doing the bare minimum in the house. I try to take a longer rest, take an early night and avoid exercise or deep cleaning (these jump my heart rate - and I&#8217;m usually experiencing spikes without these.) </p></li><li><p>Remind yourself in your green zone that you will still do your daily tasks to increase capacity. Give yourself one additional thing you will do so you don&#8217;t overdo it. </p></li></ol><p>You may like to discuss it with your medical team - anyone who understands your context and ME/CFS (or whatever conditions you live with). You could also discuss it with AI. </p><p>You could say something like, &#8220;I live with ME/CFS and x, y, z conditions. My average HRV from the past year is x. I would like to create a daily fatigue management plan based upon HRV levels - red, orange and green levels. Could you suggest the range for each level of my traffic light? Orange will include my average HRV and be &#8220;maintenance&#8221; mode.&#8221;</p><p>You don&#8217;t have to accept the first answers. Challenge the AI with additional context or use it as a guide and make your own. </p><h3>Context is vital</h3><p>Context is very important for this. I have walked most days for many years, some days they are very gentle and short, other days they are a little longer. It is part of my &#8220;maintenance&#8221; mode. Cardio is not usually part of the recommendation for ME/CFS. </p><p>Let me know if you find this helpful. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download/comments&quot;,&quot;text&quot;:&quot;Leave a comment&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download/comments"><span>Leave a comment</span></a></p><p>If you loved this and want to share it with a friend, please feel free to share this page. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/your-hrv-fatigue-plan-download?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;ab566a73-23f7-4290-9e8a-d7f616ba8cbc&quot;,&quot;caption&quot;:&quot;When I wrote the My Mama Series, I created a discussion guide to help families take the conversation further.&quot;,&quot;cta&quot;:null,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;My Mama's Day in Batteries&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-05-21T01:46:11.817Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!tnTK!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbe8199bf-f5e4-4572-9bf8-3c4dbc66dd52_1600x1600.jpeg&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries&quot;,&quot;section_name&quot;:&quot;Spoonie worksheets&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:198638486,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:2,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;50341619-be57-4b7e-ad91-8411dd6e88a0&quot;,&quot;caption&quot;:&quot;This tracker is the culmination of years of personal symptom tracking and experimentation. It&#8217;s evolved from a simple sheet I copied out each week in a blank notebook.&quot;,&quot;cta&quot;:null,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;My Daily Symptom Log Tracker&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-05-09T05:04:21.569Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!eFB4!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/my-daily-symptom-log-tracker&quot;,&quot;section_name&quot;:&quot;Spoonie worksheets&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:196974417,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:1,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div>]]></content:encoded></item><item><title><![CDATA[Paced Day Planner]]></title><description><![CDATA[Your free Spoonie Day Planning Sheet]]></description><link>https://goingmyownpace.substack.com/p/paced-day-planner</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/paced-day-planner</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Mon, 01 Jun 2026 22:32:53 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!xnTl!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Pacing is one of the best tools in our arsenal to manage our symptoms. This Day Planning Sheet helps you design your day around your energy envelope. </p><p>This daily planner is designed to help you plan your day around your energy needs. Write out your tasks, assign an H "high" or L "low" energy category to them and spread them across your day in alignment. When you have completed your task, you can tick it off.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!xnTl!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!xnTl!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png 424w, https://substackcdn.com/image/fetch/$s_!xnTl!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png 848w, https://substackcdn.com/image/fetch/$s_!xnTl!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png 1272w, https://substackcdn.com/image/fetch/$s_!xnTl!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!xnTl!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png" width="1456" height="1456" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1456,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:201392,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/png&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/196973515?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F779e3e6e-baf4-4817-b8b6-dbd191f050d6_1600x1600.png&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" 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class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">My Paced Day Planning Digital</div><div class="file-embed-details-h2">250KB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/b25bcc4f-5484-4019-a522-3600585959f6.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/b25bcc4f-5484-4019-a522-3600585959f6.pdf"><span class="file-embed-button-text">Download</span></a></div></div><blockquote><p>Download it for free and start using it right away. </p><p>You get two pages of the planner, designed to make it easier to print double-sided to save paper. Instructions for use and printing. You can choose A4 or A5, or even two-to-a-page. If you prefer a printed journal, see below. </p></blockquote><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/paced-day-planner?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/paced-day-planner?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><h2>How to use this sheet</h2><p>Assign a few tasks to each day. Taking care to assign limited numbers of high-energy tasks. When filling in your day plan, put the high-energy tasks at times when your energy is generally highest. Remember to break big tasks down into smaller micro tasks.</p><div id="youtube2-FCidD1itrdQ" class="youtube-wrap" data-attrs="{&quot;videoId&quot;:&quot;FCidD1itrdQ&quot;,&quot;startTime&quot;:null,&quot;endTime&quot;:null}" data-component-name="Youtube2ToDOM"><div class="youtube-inner"><iframe src="https://www.youtube-nocookie.com/embed/FCidD1itrdQ?rel=0&amp;autoplay=0&amp;showinfo=0&amp;enablejsapi=0" frameborder="0" loading="lazy" gesture="media" allow="autoplay; fullscreen" allowautoplay="true" allowfullscreen="true" width="728" height="409"></iframe></div></div><p><em><strong>Affiliate notice</strong>: we are part of the Amazon affiliate programme. Some links may be affiliate links; I may make a small commission if you purchase using one of these links at no extra cost to you.</em></p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://amzn.to/3PgltaH" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!klA7!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 424w, https://substackcdn.com/image/fetch/$s_!klA7!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 848w, https://substackcdn.com/image/fetch/$s_!klA7!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 1272w, https://substackcdn.com/image/fetch/$s_!klA7!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!klA7!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png" width="1456" height="1456" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/b0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1456,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:794233,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/png&quot;,&quot;href&quot;:&quot;https://amzn.to/3PgltaH&quot;,&quot;belowTheFold&quot;:true,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/196973515?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!klA7!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 424w, https://substackcdn.com/image/fetch/$s_!klA7!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 848w, https://substackcdn.com/image/fetch/$s_!klA7!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 1272w, https://substackcdn.com/image/fetch/$s_!klA7!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb0d600f2-e57f-4a1a-8ac8-18f74376edfa_1600x1600.png 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p><em>My Paced Planning Journal: Productivity for Chronic Illness Thrivers</em> by Melissa Reynolds is <strong>a specialized daily planner designed for people with fatigue-related conditions (such as fibromyalgia or CFS) to manage energy,, reduce brain fog, and improve productivity</strong>.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://amzn.to/3PgltaH&quot;,&quot;text&quot;:&quot;Buy now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://amzn.to/3PgltaH"><span>Buy now</span></a></p><h3>Further resources for you</h3><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;eca74507-3dfb-42a8-8b9f-b478bb8ea092&quot;,&quot;caption&quot;:&quot;I&#8217;ve had chronic pain and fatigue for over twenty years. First it was called fibromyalgia. Eventually it was reclassified as hypermobility spectrum disorder, with a sprinkle of ME/CFS, POTS, endometriosis and as yet unidentified gut issues.&quot;,&quot;cta&quot;:&quot;Read full story&quot;,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;What Actually Moved the Needle: My Top Treatments for Chronic Pain and Fatigue&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-05-03T22:35:46.879Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!FqKV!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fc426e3c6-caa4-44c8-b53b-9f3c1789ceac_851x315.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/what-actually-moved-the-needle-my&quot;,&quot;section_name&quot;:&quot;Chronic Illness/Wellness&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:191626328,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:1,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;cba45c1c-1fb1-4e26-8c9a-569ac0f99a25&quot;,&quot;caption&quot;:&quot;I created this system when I realised that I wasn&#8217;t attempting to treat pain until it was very high on the pain scale, at which point nothing helped, and my nervous system was like a runaway train.&quot;,&quot;cta&quot;:&quot;Read full story&quot;,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;My Best Pain Management System&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-05-09T03:58:10.331Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!9J5D!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/my-best-pain-management-system&quot;,&quot;section_name&quot;:&quot;Spoonie worksheets&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:196973598,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:0,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p>]]></content:encoded></item><item><title><![CDATA[My Mama's Day in Batteries]]></title><description><![CDATA[Free Stories Explaining ME/CFS Using the Battery Analogy]]></description><link>https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Thu, 21 May 2026 01:46:11 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!tnTK!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbe8199bf-f5e4-4572-9bf8-3c4dbc66dd52_1600x1600.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>When I wrote the My Mama Series, I created a discussion guide to help families take the conversation further. </p><p>When I was updating that, I realised I wanted to take the metaphor deeper. </p><p>So, I came up with <em>My Mama&#8217;s Day in Batteries</em>. A very simple story sharing mama&#8217;s battery over the day, and sharing the impact of that. </p><p>Best for ages 5-9 or read aloud for younger kids. For slightly older kids, <a href="https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids">this handout may be helpful.</a></p><p><em>My Mama&#8217;s Day in Batteries</em> works for mild ME/CFS or other energy-limiting conditions, like fibromyalgia. </p><p><em>Battery Analogy of Moderate Chronic Fatigue</em> is the same story, but for a mama with moderate ME/CFS - her day is significantly different. </p><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">My Mama's Day In Batteries</div><div class="file-embed-details-h2">17.9MB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/d6d7752b-278d-40fe-914d-ec74fd630ac8.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/d6d7752b-278d-40fe-914d-ec74fd630ac8.pdf"><span class="file-embed-button-text">Download</span></a></div></div><p>Download for free above, or grab the moderate ME/CFS version below.</p><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">Battery Analogy Of Moderate Chronic Fatigue</div><div class="file-embed-details-h2">13.2MB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/967a51e9-114e-4c08-9e8f-78b6aef30eb0.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/967a51e9-114e-4c08-9e8f-78b6aef30eb0.pdf"><span class="file-embed-button-text">Download</span></a></div></div><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>One way to explain energy-limiting conditions, like ME/CFS and fibromyalgia, is that my mama has a tricky battery, like on an iPad or tablet. So we walk through the battery analogy, in simple terms. </p><p>Then there are worksheets, designed to continue conversations and help your family make practical plans. </p><p>If you have any feedback on the stories, or how to make it easier to understand for kids, please do let me know.</p><div class="directMessage button" data-attrs="{&quot;userId&quot;:304734221,&quot;userName&quot;:&quot;Melissa&quot;,&quot;canDm&quot;:null,&quot;dmUpgradeOptions&quot;:null,&quot;isEditorNode&quot;:true}" data-component-name="DirectMessageToDOM"></div><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!tnTK!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbe8199bf-f5e4-4572-9bf8-3c4dbc66dd52_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" 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class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p></p><p>Did you download either? Did you find it helpful?</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries/comments&quot;,&quot;text&quot;:&quot;Leave a comment&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries/comments"><span>Leave a comment</span></a></p><p>Please feel free to share this post. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/my-mamas-day-in-batteries?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><p><a href="https://www.amazon.com/dp/B0D6771P75?binding=paperback&amp;ref=dbs_dp_rwt_sb_pc_tpbk">The My Mama Series is available now. </a></p><p>You can grab paperback and eBook versions on Amazon. </p><p>They are also available in German! </p><p>I&#8217;m working on getting them available to libraries (it&#8217;s a tricky process for little indie authors, but I&#8217;m working on it). </p><p></p><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;ea866b85-a73c-43f2-92fb-d60c4f652b7b&quot;,&quot;caption&quot;:&quot;I wrote these books to support conversations I have been having with my children - currently 12, 9, 7 and 5 years old.&quot;,&quot;cta&quot;:null,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;The My Mama Series&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2025-12-13T22:07:28.432Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!Fd1G!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8434fee7-d80d-4ec2-80e8-1e343b4a3341_970x600.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/the-my-mama-series&quot;,&quot;section_name&quot;:&quot;My Work&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:181544283,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:1,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;ef9a5e20-cadb-49b0-a2b8-ca6079902419&quot;,&quot;caption&quot;:&quot;When I wrote the My Mama Series, I came up with a discussion guide to help families take the conversation further.&quot;,&quot;cta&quot;:null,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;Talking About Fatigue with Kids&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-05-21T00:01:00.339Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!CIYb!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids&quot;,&quot;section_name&quot;:&quot;Spoonie worksheets&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:198634056,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:0,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div>]]></content:encoded></item><item><title><![CDATA[Talking About Fatigue with Kids]]></title><description><![CDATA[Your Free Battery Analogy Handout]]></description><link>https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Thu, 21 May 2026 00:01:00 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!CIYb!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>When I wrote the My Mama Series, I came up with a discussion guide to help families take the conversation further. </p><p>Now, I have edited it further. </p><p>And pleased to offer it to you, here, free. </p><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">Handout For The Battery Analogy For Kids</div><div class="file-embed-details-h2">13.6MB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/c4938572-e78a-4b9a-8bcd-f8f6e8dd177a.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/c4938572-e78a-4b9a-8bcd-f8f6e8dd177a.pdf"><span class="file-embed-button-text">Download</span></a></div></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!CIYb!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!CIYb!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!CIYb!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg" width="1456" height="1456" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1456,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:178911,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/198634056?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!CIYb!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!CIYb!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9ae4460b-1374-467a-b94c-bc1bb46ae948_1600x1600.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>One way to explain energy-limiting conditions, like ME/CFS and fibromyalgia is that my mama has a tricky battery, like on an iPad or tablet. So we walk through the battery analogy, in simple terms. </p><p>Then there are worksheets, designed to continue conversations and help your family make practical plans. </p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!WdOX!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!WdOX!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!WdOX!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg" width="1456" height="1456" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1456,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:178014,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/198634056?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!WdOX!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!WdOX!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2ffe599c-302d-41ea-b92f-a6a6b858d507_1600x1600.jpeg 1456w" sizes="100vw"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Did you download it? Did you find it helpful?</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids/comments&quot;,&quot;text&quot;:&quot;Leave a comment&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids/comments"><span>Leave a comment</span></a></p><p>Please feel free to share this post. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/talking-about-fatigue-with-kids?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><p><a href="https://www.amazon.com/dp/B0D6771P75?binding=paperback&amp;ref=dbs_dp_rwt_sb_pc_tpbk">The My Mama Series is available now. </a></p><p>You can grab paperback and eBook versions on Amazon. </p><p>They are also available in German! </p><p>I&#8217;m working on getting them available to libraries (it&#8217;s a tricky process for little indie authors, but I&#8217;m working on it). </p><p></p><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;ea866b85-a73c-43f2-92fb-d60c4f652b7b&quot;,&quot;caption&quot;:&quot;I wrote these books to support conversations I have been having with my children - currently 12, 9, 7 and 5 years old.&quot;,&quot;cta&quot;:null,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;The My Mama Series&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2025-12-13T22:07:28.432Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!Fd1G!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8434fee7-d80d-4ec2-80e8-1e343b4a3341_970x600.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/the-my-mama-series&quot;,&quot;section_name&quot;:&quot;My Work&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:181544283,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:1,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><p></p>]]></content:encoded></item><item><title><![CDATA[My Daily Symptom Log Tracker]]></title><description><![CDATA[Your Free Daily Symptom Log Printable]]></description><link>https://goingmyownpace.substack.com/p/my-daily-symptom-log-tracker</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/my-daily-symptom-log-tracker</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Sat, 09 May 2026 05:04:21 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!eFB4!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>This tracker is the culmination of years of personal symptom tracking and experimentation. It&#8217;s evolved from a simple sheet I copied out each week in a blank notebook.</p><p>In my journey from moderate to mild symptoms, I come back to symptom tracking again and again to support me in managing symptoms as well as possible. I hope it helps you.</p><div class="captioned-image-container"><figure><a class="image-link image2" target="_blank" href="https://substackcdn.com/image/fetch/$s_!mN6I!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!mN6I!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 424w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 848w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 1272w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!mN6I!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png" width="600" height="180" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:180,&quot;width&quot;:600,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:52920,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/png&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/196974417?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!mN6I!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 424w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 848w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 1272w, https://substackcdn.com/image/fetch/$s_!mN6I!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1d488e58-55e1-40dd-beb3-8c8c32ff02c0_600x180.png 1456w" sizes="100vw" fetchpriority="high"></picture><div></div></div></a></figure></div><h2>Download, free, here</h2><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">2026 Daily Health Log Digital</div><div class="file-embed-details-h2">507KB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/6e2e4dd7-6453-4a6b-af33-702afd8e4ddf.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/6e2e4dd7-6453-4a6b-af33-702afd8e4ddf.pdf"><span class="file-embed-button-text">Download</span></a></div></div><blockquote><p>Really for free? Yes! Please take this, use it and let me know if it helped you. </p></blockquote><p>You get a two-page symptom log, which enables you to easily print double-sided. With instructions for use and printing. </p><p>You&#8217;re welcome to share this page with a friend who you think will like it too. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/p/my-daily-symptom-log-tracker?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/p/my-daily-symptom-log-tracker?utm_source=substack&utm_medium=email&utm_content=share&action=share"><span>Share</span></a></p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!eFB4!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!eFB4!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!eFB4!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!eFB4!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 1272w, 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srcset="https://substackcdn.com/image/fetch/$s_!eFB4!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!eFB4!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!eFB4!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!eFB4!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fea78f161-deaa-4bc4-8080-9d689d511917_1600x1600.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div 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stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>If you would prefer the beautiful paperback journal, you can <a href="https://www.lulu.com/shop/melissa-reynolds/my-ultimate-symptom-tracker/paperback/product-yv8wnkd.html?q=&amp;page=1&amp;pageSize=4">purchase that here. </a></p><h2>How to use this tracker </h2><p>By taking a couple of minutes, a few times a day to mindfully consider your symptoms, I believe we can more proactively manage our symptoms. And hopefully reduce them.</p><p>Keeping an eye on our health through a daily symptom log and maximising the many choices we make each day can have a tremendous impact on our quality of life. I firmly believe that we have the power to impact our lives dramatically with each little choice.</p><p><strong>What are the benefits of tracking?</strong></p><ul><li><p>Knowing the longer-term patterns</p></li><li><p>Ensuring the things we are trying are working</p></li><li><p>Knowing what doesn&#8217;t help</p></li><li><p>To help us communicate with our medical team</p></li><li><p>As a record (our memory can be foggy)</p></li></ul><p>In short, to help us target our treatments (so we don&#8217;t waste money on the things that don&#8217;t work) to improve as much as possible.</p><p>But also because we can&#8217;t remember everything. It all blurs together, and it is helpful to tease out the strands and watch the patterns. By writing it down, we have the data to discuss important topics with our medical team.</p><p>If you would prefer the beautiful paperback journal, you can <a href="https://www.lulu.com/shop/melissa-reynolds/my-ultimate-symptom-tracker/paperback/product-yv8wnkd.html?q=&amp;page=1&amp;pageSize=4">grab that here. </a></p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!emY0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fd2a1878c-e2dc-4d9e-969f-4e7b7d4f53ab_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!emY0!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fd2a1878c-e2dc-4d9e-969f-4e7b7d4f53ab_1600x1600.jpeg 424w, 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stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p><strong>More on symptom tracking</strong></p><div id="youtube2-N38ekeVL0xM" class="youtube-wrap" data-attrs="{&quot;videoId&quot;:&quot;N38ekeVL0xM&quot;,&quot;startTime&quot;:null,&quot;endTime&quot;:null}" data-component-name="Youtube2ToDOM"><div class="youtube-inner"><iframe src="https://www.youtube-nocookie.com/embed/N38ekeVL0xM?rel=0&amp;autoplay=0&amp;showinfo=0&amp;enablejsapi=0" frameborder="0" loading="lazy" gesture="media" allow="autoplay; fullscreen" allowautoplay="true" allowfullscreen="true" width="728" height="409"></iframe></div></div><h2>Other resources that may support you</h2><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;a6510501-3e12-4534-b62f-bb9c525ddb88&quot;,&quot;caption&quot;:&quot;I have been a paper person my whole life.&quot;,&quot;cta&quot;:&quot;Read full story&quot;,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;Why I Finally Switched to Spreadsheets for Symptom Tracking &quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2026-02-25T23:57:14.338Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!m0qK!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbc9a5f78-9625-4e02-962d-7ee829b71172_1067x302.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/why-i-finally-switched-to-spreadsheets&quot;,&quot;section_name&quot;:&quot;Chronic Illness/Wellness&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:189093151,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:0,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;5a3bf3ad-95d6-4c7d-b68c-6762e82c6ffa&quot;,&quot;caption&quot;:&quot;Today I want to share something I&#8217;m really excited about&#8212;a simple pain management rule I&#8217;ve created that&#8217;s been a game-changer for me.&quot;,&quot;cta&quot;:&quot;Read full story&quot;,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;The &#8220;If This, Then That&#8221; Rule That Changed My Pain Management&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2025-11-27T23:44:30.115Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!lP9I!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8fa7ea86-52d8-4f9b-a5f4-5d19bbfbfc44_1600x1600.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/the-if-this-then-that-rule-that-changed&quot;,&quot;section_name&quot;:&quot;Chronic Illness/Wellness&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:174884359,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:3,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div>]]></content:encoded></item><item><title><![CDATA[My Best Pain Management System]]></title><description><![CDATA[Get on top of pain with the free If This, Then That Pain Management Plan card]]></description><link>https://goingmyownpace.substack.com/p/my-best-pain-management-system</link><guid isPermaLink="false">https://goingmyownpace.substack.com/p/my-best-pain-management-system</guid><dc:creator><![CDATA[Melissa]]></dc:creator><pubDate>Sat, 09 May 2026 03:58:10 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!9J5D!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I created this system when I realised that I wasn&#8217;t attempting to treat pain until it was very high on the pain scale, at which point nothing helped, and my nervous system was like a runaway train.</p><p>I made my own If This Then That plan several years ago and followed it without question. When I wrote &#8220;4/10&#8221; in my symptom tracking journal, I knew what to do next. This helped me reduce flare-ups and decrease my average pain levels.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!9J5D!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!9J5D!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!9J5D!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg" width="1456" height="1456" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1456,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:202240,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://goingmyownpace.substack.com/i/196973598?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!9J5D!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 424w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 848w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 1272w, https://substackcdn.com/image/fetch/$s_!9J5D!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F16095935-54ba-4e2d-8413-29a68671ac16_1600x1600.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://goingmyownpace.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://goingmyownpace.substack.com/subscribe?"><span>Subscribe now</span></a></p><h3>Download, free, here</h3><div class="file-embed-wrapper" data-component-name="FileToDOM"><div class="file-embed-container-reader"><div class="file-embed-container-top"><image class="file-embed-thumbnail-default" src="https://substackcdn.com/image/fetch/$s_!0Cy0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack.com%2Fimg%2Fattachment_icon.svg"></image><div class="file-embed-details"><div class="file-embed-details-h1">If This Then That Card</div><div class="file-embed-details-h2">92.6KB &#8729; PDF file</div></div><a class="file-embed-button wide" href="https://goingmyownpace.substack.com/api/v1/file/ba3e7c79-6591-4b89-a917-00ed7cb23e82.pdf"><span class="file-embed-button-text">Download</span></a></div><a class="file-embed-button narrow" href="https://goingmyownpace.substack.com/api/v1/file/ba3e7c79-6591-4b89-a917-00ed7cb23e82.pdf"><span class="file-embed-button-text">Download</span></a></div></div><blockquote><p>Yes, just like that. No email input - although you are warmly invited to subscribe to this Substack. But this worksheet is a gift for you to take and use. </p></blockquote><p><strong>You get:</strong></p><p>A two page PDF that you can download, print and use immediately</p><p>On page one is a half-page If This...Then That worksheet and the instructions/guidance/example</p><p>On page two is two copies of the If This...Then That worksheet - incase you&#8217;d like to print just the template and have one for later (because our plans won&#8217;t stay static).</p><p>Use this worksheet to create a plan for when symptoms are doing certain things. Ask your doctor, pharmacist, or other healthcare professional for assistance. It will help to make a list of things that help and be honest about when on the symptom scale they are most helpful.</p><h3>For more on how to use it</h3><p>I provide an example in the download, and you can <a href="https://www.youtube.com/watch?v=XfPuJFrxT1Q">watch this video </a>for more details on the If This Then That idea.</p><div id="youtube2-XfPuJFrxT1Q" class="youtube-wrap" data-attrs="{&quot;videoId&quot;:&quot;XfPuJFrxT1Q&quot;,&quot;startTime&quot;:null,&quot;endTime&quot;:null}" data-component-name="Youtube2ToDOM"><div class="youtube-inner"><iframe src="https://www.youtube-nocookie.com/embed/XfPuJFrxT1Q?rel=0&amp;autoplay=0&amp;showinfo=0&amp;enablejsapi=0" frameborder="0" loading="lazy" gesture="media" allow="autoplay; fullscreen" allowautoplay="true" allowfullscreen="true" width="728" height="409"></iframe></div></div><p><strong>Commenter&#8217;s feedback:</strong> </p><p>&#8220;You continue to amaze me. This is a great idea. I will create an if/then list for myself.<br>I agree with you. I try very hard to distract myself, right up to when I can no longer do that and at that point, I wish that I had realized a bit earlier that I should start taking something for my pain because I was zipping right up into moderate.&#8221; </p><h2><strong>My &#8220;If This, Then That&#8221; Rule</strong></h2><p>Here&#8217;s how it works:</p><ul><li><p><strong>If pain = 3/10</strong> &#8594; stretch, heating pad, self-massage</p></li><li><p><strong>If pain = 4/10</strong> &#8594; take paracetamol</p></li><li><p><strong>If pain = 5/10</strong> &#8594; add ibuprofen (usually a headache arrives at this point)</p></li><li><p><strong>If pain = 6/10</strong> &#8594; take a muscle relaxant (and go to bed to do Yoga Nidra)</p></li></ul><p>I wrote it down. No debating, no second-guessing. A couple of times a day, I jot down my pain level, and if it crosses the threshold, I follow the rule.</p><p>The result? Less daily pain, fewer flares, and less time spent managing symptoms.</p><p><em><strong>Please remember we are all managing different types of pain and are given differing instructions regarding medications - please discuss your plan with your doctor.</strong></em></p><h3>What if you want more support and to create a full symptom management plan, including a flare plan?</h3><p>You are welcome to purchase the full Symptom Management Micro Course. Available <a href="https://payhip.com/b/y2iwj">in my store here</a>. </p><p></p><div class="digest-post-embed" data-attrs="{&quot;nodeId&quot;:&quot;32336996-1f69-45a9-b2ea-66e9adaa310b&quot;,&quot;caption&quot;:&quot;Today I want to share something I&#8217;m really excited about&#8212;a simple pain management rule I&#8217;ve created that&#8217;s been a game-changer for me.&quot;,&quot;cta&quot;:&quot;Read full story&quot;,&quot;showBylines&quot;:true,&quot;showDescription&quot;:true,&quot;showImage&quot;:true,&quot;size&quot;:&quot;lg&quot;,&quot;isEditorNode&quot;:true,&quot;title&quot;:&quot;The &#8220;If This, Then That&#8221; Rule That Changed My Pain Management&quot;,&quot;publishedBylines&quot;:[{&quot;id&quot;:304734221,&quot;name&quot;:&quot;Melissa&quot;,&quot;bio&quot;:&quot;Author, mama, and chronic illness advocate. I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. 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I share stories, tips, and resources to help you live life your way &#8212; even with chronic illness. Subscribe for practical tips, personal stories, and book updates delivered straight to your inbox. &quot;,&quot;photo_url&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/f7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;is_guest&quot;:false,&quot;bestseller_tier&quot;:null}],&quot;post_date&quot;:&quot;2025-11-19T21:12:19.433Z&quot;,&quot;cover_image&quot;:&quot;https://substackcdn.com/image/fetch/$s_!2Rt0!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F780fc416-1205-485a-a8bb-9f7cd4c3eb3c_1600x1600.png&quot;,&quot;cover_image_alt&quot;:null,&quot;canonical_url&quot;:&quot;https://goingmyownpace.substack.com/p/why-you-need-a-flare-plan-and-how&quot;,&quot;section_name&quot;:&quot;Chronic Illness/Wellness&quot;,&quot;video_upload_id&quot;:null,&quot;id&quot;:174883400,&quot;type&quot;:&quot;newsletter&quot;,&quot;reaction_count&quot;:3,&quot;comment_count&quot;:0,&quot;publication_id&quot;:6274227,&quot;publication_name&quot;:&quot;Going My Own Pace&quot;,&quot;publication_logo_url&quot;:&quot;https://substackcdn.com/image/fetch/$s_!RodE!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ff7cdec74-7b28-47e6-b1eb-78c53b4815fb_3024x3024.jpeg&quot;,&quot;belowTheFold&quot;:true,&quot;youtube_url&quot;:null,&quot;show_links&quot;:null,&quot;feed_url&quot;:null}"></div><p></p>]]></content:encoded></item></channel></rss>